Final Post

Friends,

This is Austin’s father, Carty.

We lost our beautiful son Austin to Acute Lymphoblastic Leukemia this past May 8th.

This blog was an enormously important source of inspiration and comfort for Austin, many of you have told us it was valuable for you as well.

Deb (his mom), Dylan (his brother), and I miss him terribly as you might imagine.

We’ll leave the blog up indefinitely and keep an eye on the comments.  You can reach us at <debra at roundpond dot net>, <carty at roundpond dot net>, and <dylan at roundpond dot net>.

Thanks for all your engagement and encoragement.  ALL is a nasty disease, there is a lot of work remaining to make progress toward a cure, if you are able – consider a donation to the The Leukemia & Lymphoma Society.

-C

 

    • richard
    • September 20th, 2011 10:01am

    <3

  1. Goodbye Austin,,,
    Hope You rest in peace now but I’m still countinue to fight,,,
    this year to eight I live with leukemia (CML)

    Regards

    • Evan Cole
    • December 7th, 2011 12:42pm

    To Austin’s parents and family: I must say I was sadend to read this Blog. I am a 2005 Bone marrow transplant survivor of All. I know the fight he went through and you can be proud of your son and the way he faced this disease. Being treated at Brigham/ Dana farber, they are the best and I am sure he had the best treatment. I am 54 now but fight the rejection issues every day and get strenth in my fight from people like Austin. Thank you for keeping this blog up.It is important. Evan

    • Elliott
    • December 17th, 2011 10:04pm

    I have stumbled across this website by accident, as I was searching for a friend’s. As I started to read anyway, I began to realize what was going on here. It sounds like Austin was a fantastic person, and very well-loved by many. I will be donating a small percentage of every paycheck I make in 2012 to the L&L society, while hoping for a cure to this horrible affliction. I wish your family the absolute best in heart, health and happiness.

    ~Elliott

    • Debra
    • December 20th, 2011 10:29am

    Richard, Ocekojiro, Evan and Elliott,

    Thank you all for your kind words and wishes for our family. It always amazes me such kindness comes from strangers.

    Austin was a joy to know and we are and always will be, proud of him.

    • richard
    • January 31st, 2012 1:16pm

    <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3austin <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3 <3

    • Lee
    • August 15th, 2012 6:24am

    Very moving blog. Austin sounds like he was an amazing person – I’m also inspired by this to give me support to Leukemia and Lymphoma Research. Thank you for leaving this up and best wishes to Austin’s family. I am so sorry that you and Austin had to go through this.

    • Siobhan
    • August 22nd, 2012 1:53pm

    Thank you for leaving this blog up for us. My little brother died aged 22 from T Cell ALL late last winter, and reading this and learning about Austin has been so sad but rewarding. You must be so proud of him. My thoughts are with you.

    • Rin
    • November 28th, 2012 1:26pm

    I’m sorry.

    • Alexis dela Vega
    • December 7th, 2012 9:11am

    It is truly painful to let go f someone who makes you complete. I have a niece who is battling with Leukemia. The cancer cells continue to spread on his young body and the doctor said it almost cover his spinal cord. It is hard to accept that he has remaining days on this earth. At the early age of 3 he already have a huge battle over leukemia. We are not loosing hope, though. But whatever happens we know that Lord God has plans amidst all these things.

    • CJ
    • December 22nd, 2012 8:17pm

    Read the entired blog. What an amazing young man Austin must have been! I got here because I am researching clavicle pain that is unexplained. Wow! His story makes me cry but again I am amazed at his words and his realness about it all. To his family, in your sorrow, you must be proud of the person he was. Very strong to fight as long as he did. May God bless you all. <3

  2. First I would like to say how sorry it is to hear another has been lost to any of the Leukemia’s, and just last week I/we too just lost a dear friend,Father,Husband,etc; to this sometimes ugly disease but certainly not without remembering the effect it has on the patient as well as the people/friends/family who knew the one whom has passed on to meet our lord… I for one have a high end classification of CLL with poor prognostic factors but how this cancer effects all of us whom are left is really sad because even when we are not feeling well from the cancer our looks and the way we talk or sound makes other’s think we are not doing to bad, hence the comments but you don’t look sick sort of thing, or that we have the good cancer, but the real facts are that when we lose a friend with this type of cancer, for some reason the person seems to take a piece of us with them and im not exactly sure why that is the feelings but it tends to be like that for me, I can’t speak for everyone of course. My friend and Admin of our group had CLL, he had fought this for several years but eventually joined a Clinical Trial that looked so promising according to everyone involved in it, from the team and sponsors to the bottom of the list, and it just Boosted my friends spirits thru the roof, not to mention it boosted mine because of our closeness like prognostic marker’s / factors that made us almost identical except that he had his first but yet had gone down the path of treatment just 6 months or so ahead of me but neither of us got what we expected, him 9 months remission, and me two weeks more than him, but the time we got from the FCR treatment was a great feeling to say the least. I ADD the NAME )Randy Shirley TO THE LIST OF THOSE ME WILL ALONG WITH YOUR FRIEND HERE AS WELL. I feel you pain, and I am trying to find a way to get mine out because the regular person who may know about Cancer in a general form and what gets done, has no clue really what leukemia does to us and the feeling of losing such great people who for what any other reason seem to look just fine most of the time just before they leave all of there friends and family here on this earth behind, and as in most cases of any illness we never or rarely get the chance to say something to them and that is most def. hard for us. I feel your pain as I hope you can feel mine, not because I want you to hurt more but to give me Solice in knowing other’s care like myself about how easy it is to make friends with cancer in particular LEUKEMIA, than any other cancer and how hard it is to deal with unlike other cancer’s as well. I run the Leukemia Lighthouse Connection on FB and anyone is welcome to join if they find the need for warm souls looking for warm hearts to connect with. but my heart goes out to you all for your friend (S) whom have gone. thanks for letting me vent a bit but I care about us all, and the only real way to beat this beast is TOGETHER… I pray yours and our brothers and sister’s will alway’s rest in peace. God Bless to you all. PAUL ROBERT of the LLC…

    • Lisa Santos
    • January 11th, 2013 2:07am

    I came across this blog while searching about ALL. My friends granddaughter was dx in Nov 2012. What an amazing young man he was. I am so sorry for your loss.

    • Lizette Torres
    • January 13th, 2013 2:58am

    Ty for sharing Austin story , I know he is not here to read this but he still helping others that are going true his hard moments in taking his precious time left, to let us know what we have to do step by step, Iam so gratefully ,I will pray for God to comfort his beautiful family

    • LM
    • January 27th, 2013 11:33pm

    My heart goes out to your family. Thank you for continuing to share Austin’s Blog. I found it whilst searching for information on Leukemia after a family in our small community just lost their 18 year old son to this terrible disease 2 days ago. Austin has helped me to understand more about this disease & the struggle that Leukemia patients go through. His posts are honest, witty & beautifully written. He showed great courage & fought hard. I think he would be happy to know that his blog continues to help others. x

    • Joe
    • February 5th, 2013 3:50am

    I want to thank you for leaving this for us to read I am fighting ph+all and on Ponatinib and other investigational drugs and things are getting really rough …this has restored some of my fight and I hope it does for others as well…
    Sincerely
    Joe Grandstaff jr

    • NeMo
    • March 27th, 2013 12:48pm

    Rest in Peace, it was a hard fight. I am in my own fight with CML. 8 years past. This blog has been an inspiration to me and my family, my daughter is struggling with depression/bipolar. They are going to beat this cancer and infact all cancer.

    • marian moore
    • April 12th, 2013 9:28pm

    Hi Carty, Deb & Dylan,

    Just to say Thank you for leaving Austin’s blog up. We lost our son Marcus to ALL on 13th October 2012, just six months ago on Saturday. Just like Austin, he was 24years old and was so brave and fought the illness for six and a half years. He did not have a bone marrow transplant until second remission. I keep wondering if he should have had this BMT after first remission. Marcus had B cell ALL and was 18 when diagnosed. There was a 64 per cent chance of survival but it took longer for Marcus to get remission after induction.

    What an incredible young man your son was. Marcus used to say to us that he would go down fighting and all he wanted was to spend the last two weeks of his life with us as a family. We had been to London to take part in a trial drug blinatumomab which did not work and we were told that we should do whatever Marcus wanted in the following ten days as he had only 2 weeks left to live.

    It was a very difficult journey with Marcus and so sad to loose our beautiful young son so young when he had so much to live for.

    Over €100000 has been raised in Marcus’s name and he can be so proud but the pain of loss is still so raw and we know how painful it is to loose someone so dear as you have done.

    We have two beautiful daughters and treasure them both but will always remember our son and how brave he was and will keep his memory alive as he asked us to and will set up a trust fund for research into a cure for leukaemia.

    We wish you peace and joy and am glad to have got a glimpse into Austin’s fight and salute him for being so brave. I hope Marcus meets with him as their spirits soar heavenwards.

    With best wishes.

    Marian, Michael, Lisa and Emer

    • Debra
    • April 14th, 2013 7:39pm

    Thank you for your very kind note. I am so sorry for the loss of your son. To take time to send a note to us shows how much strength you have. This is not an easy journey we are now on, but our son’s have shown us what courage looks like. Both of them will live on with us.

    @marian moore

    • Ani
    • May 22nd, 2013 8:22pm

    I wanted to thank you for such a beautiful and useful blog. In creating this blog, you have given the confidence No one is alone. My cousin, young like Austin, is fighting this horrible illness with doctors predicting a week to live.
    We may not be capable of fighting this monster right now but one day,I pray, it will have no hold over us.
    you have had too much to fight in your young life.
    Rest in peace.

    • Lisa
    • May 24th, 2013 12:09am

    Thank you for leaving up this blog, your son was such an intelligent young man, and still his words inspire and live on. Only ones going through ALL can understand truly the battle, but Austins words, help us understand what family members or freinds with ALL are going through. Thank you so much, and God Bles your family.

    • Manasvi
    • May 29th, 2013 6:49am

    Sorry for your loss……..lost my beutiful daughter to complications of BMT on 12th April this year……..

    • Debra
    • May 29th, 2013 2:08pm

    So sorry Manasvi {{hugs}}@Manasvi

    • Rajeev
    • May 31st, 2013 10:51pm

    I am sorry for your loss.
    I lost my 3 year old daughter on 16th may 2013. She was diagnosed with ALL about a month ago and as per doctors she had a very good chance of survival. One month has changed our lives. Life is cruel and my faith in god has shattered…

    • jeff
    • June 20th, 2013 4:00am

    @Joe
    have they tried gleevec 400

    • Joseph
    • July 5th, 2013 4:56am

    I have a 3 year old son that was just diagnosed with ALL. I never thought this was happen to him, to me, to us. Thank you for keeping this blog up and I hope that time heals your family, if at all possible.

    Joseph

    • Amber
    • July 17th, 2013 2:32am

    I’m not sure how I stumbled upon this page, but I’m thankful that I did. Your son seemed like such a wonderful young man, so smart and full of life. I’m so sorry for your great loss. My son is 17years old now and has just finished treatment for ALL. I have so many fears and have been searching for answers..I suppose that’s how I ended up here. I have so many questions for you..could you please email me sometime? I’d like to know your sons experiences and possibly what I can expect in the future. A relapse is my worst nightmare and I cant help but investigate the chances of this occurring and if so with what malevolence does it bring with it. Feel free to email me at any time ampearl1955@yahoo.com. Thanks, Amber

    • Amber
    • July 17th, 2013 2:34am

    @Joseph
    I’ve just finished treatment with my son. If there is anything I can help with feel free to contact me. Praying for your son.

    • Joe
    • July 28th, 2013 7:35pm

    No they never did try it they tried sprycel which has had good effects..@jeff

    • Charles
    • August 13th, 2013 3:49am

    I am sorry for your loss.

    • shelley han
    • September 21st, 2013 5:21pm

    thank you for sharing this post..
    my bf is battling leukemia.
    after dianosed in brain tumor he survived 3 major brain surgeries and having aneurism.
    after receiving blood transplant he has diagnosed with leukemia .
    he has received bone marrow transplant then 3 weeks later just found out about relap.
    there are almost no chance as doctor’s opinion.
    we were planning to get married next year…
    I am not sure if it will happen but…
    i am glad to came across to this blog about Austin.

    I won’t give up the hope.

    • Gina
    • September 25th, 2013 9:25am

    I came across this blog when reading the blog of a friend who is 22 and in treatment for AML. There are many similarities to Austin’s story, including being treated at Beth Israel. Austin’s story is incredibly moving and helpful to anyone in treatment. Thank you for allowing it to remain online. He was obviously very talented, bright, and a fighter. Please accept my condolences on the passing of such a fine young man.

    • Ross Mayer
    • October 25th, 2013 12:45pm

    Thank you for leaving this blog even tho Austin has passed. I am terminal, too–diagnosed 2 years ago. I wonder a lot about the end and what it will be like. This really helps me.

    God bless,
    Ross Mayer
    Walnut Creek, CA

    • Nicole Alonso
    • October 31st, 2013 6:04pm

    I’m sorry for your lose.. I’m only 14 and I’m in remission I had ALL I wish you guys the best of luck<3

    • Katrina Brougham
    • November 14th, 2013 5:12am

    I am so sorry for your loss.

    I think this blog is so important because it gives a window to what people living with cancer, especially leukaemia go through. I am a doctor and I seldom spare a thought to what it must be like to have “holes in your neck”, a “needle in your spine” et al. I have recommended Austin’s blog to all my facebook friends as I think they would all gain something from it – especially my doctor and nurse friends.

    Thank you for leaving Austin’s blog up for the world to benefit.

    My blessings and love to you all
    Katrina

    • Chris
    • November 15th, 2013 10:27pm

    My brother has ALL with Philadelphia chrom and had a stem cell transplant in May of 2012, our sister was his donor. He stayed in remission for a year but is now out of remission and currently in his second week of chemo. Hoping to achieve remission and a second transplant. He is having a difficult time dealing with this relapse and is very angry. I hope that he can come to terms and commit to fighting this disease. I fear that he is not going to make it…..

    • renu
    • January 6th, 2014 4:00pm

    I got worried in the middle of the night…it’s actually 2:30 am and I have to get up early to go to the hospital for the final day of radiotherapy for my brother who has been gloriously fighting this illness for ten months now. I was looking for survivor stories and my heart broke when I read this post and realized Austin passed away.
    I offer my condolences to the family. What an incredible man!! God bless u wherever you are.
    Renu

    • Cayla
    • February 20th, 2014 12:42pm

    Im so sorry for your loss, i know how you feel, i never commented on this blog until now but ive been reading since i was diagnosed with anemia, doctors told me i had 2-3 years before it progressed into Leukemia and that was when i was 9. Anemia gave me the symptoms of Leukemia but to a certain extent, Im now 14 and about to undergo my Biologcal Therepy, Chemotherapy, Radiational Therapy,and Immunotherapy, ill keep the memory of Austin through everything. R.I.P

  3. Cayla, you will remain in my thoughts. If you can let us know how you are doing. Your road won’t be easy and I hope you have a strong family and friends surrounding you. @Cayla

    • Anita
    • June 21st, 2014 1:01am

    I am so very sorry to hear about your loss. I stumbled upon this blog while trying to research leukemia, we are losing my step father to the disease as well. There are no words to express my sympathy to the parents & family of Austin, no one should ever have to experience the loss of a child. I just cannot even fathom what that must be like. I am praying for you tonight.

    • Berna
    • July 9th, 2014 12:57pm

    My condolences for the loss of such a vibrant young man. I admire Austin’s courage and strength, his acceptance of his condition and the will to fight to the end.
    I lost my best and childhood friend to AML a while back – tomorrow will be exactly a mnth since she lost the battle. She was undergoing chemotherapy with the hope of getting a BMT afterwards. This was only 6 months from when the diagnosis was made. May they rest in peace.

    • GEORGE
    • October 15th, 2014 10:55am

    I just lost my good friend Steve to Leukemia. I wanted to know why people die from this disease and came across Austin’s log. I so much appreciate his strength and courage to keep writing throughout his journey. My frient Steve and I served on the church board together. I don’t know what type of leukemia he had but after two years of fighting it became clear that the cancer was going to kill him. Steve was under hospice care for two weeks at his home and died early morning on October 10th, 2014.

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