Archive for the ‘ Pain ’ Category

Ponatinib

The only option I had left was a phase 2 study being done in a hospital across the street from where I’d been receiving treatment for the last year. I was not the slightest bit excited about meeting new doctors, never mind new hospital administration. When I was first diagnosed the course of chemotherapy I took was [ READ MORE ]

Yeah, F*ck February!

I took a quick glance over my old posts and saw the title “It’s really February?” I remember writing that and being amazed that my body was able to survive through treatment as long as it had… so… now we all know how I feel about that. I’ve lost anything approaching continuity at this point [ READ MORE ]

Restrictions Apply

It turns out my approximated transplant schedule in my previous post was fairly accurate. I was admitted on Friday, March 19th for an Allogeneic Hematopoietic Stem Cell Transplant. That evening I had two lines surgically inserted 1) a ‘temporary’ central line on the left of my neck that will remain for my stay here at the hospital [ READ MORE ]

New Skin

It’s been a while since my last post – Since then I’ve undergone one more cycle of the high-dose methotrexate and was re-admitted this morning for a third and final round.  The chemotherapy hasn’t been too bad aside from some nausea for a few days after the dose but the constant back-and-forth of being discharged and [ READ MORE ]

Theories

My back pain is clearing up by leaps and bounds on it's own without anything approaching a reasonable explanation as to what it was or why it's getting better. Fine, whatever - I'm always going to blame it on the whole spine / needle 'thing' but that's just me. [ READ MORE ]

Back to Business

Alright. Tuesday morning I’m excited to get my treatment started, the doctors decided to wait one more day to let my liver enzyme numbers drop a little more. Some of the medications I’d been on can cause your liver to go haywire and I need mine in tip top shape to process all the chemotherapy [ READ MORE ]

Pain

I’m in a terrible amount of pain – between my marathon headache which doesn’t respond to painkillers and I managed to tweak my spine somehow and for now i’m bedridden. I’m back on the morphine wagon big time. I have a lot I want to write about but just no will to do it right [ READ MORE ]

Up On The Roof Again

Sorry for the lapse in posts – I was discharged from the hospital early Wednesday afternoon with instructions to report back to be admitted at 8:30 am on Friday. I was overwhelmed with enjoying my time home (which I did) and never even thought to check my e-mail or write a new post. When I [ READ MORE ]

Withdrawal

One of the stranger symptoms I experienced from Leukemia before I began treatment was night sweats. I never really understood how or why my body would choose to sweat so profusely and only when I was trying to get some sleep. After my diagnosis I found out it’s a big red flag that can indicate blood [ READ MORE ]

PCA

I had my patient controlled analgesia removed today. Mine came in the form of a constant morphine drip hooked up to the central line in my neck. Imagine a syringe the size of your forearm brimming with painkiller, the thing was a little intimidating. It would provide a constant background dose of morphine to keep [ READ MORE ]

My old view from 765 Feldberg at BIDMC


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